Results from the Seize the Truth About Epilepsy Perceptions (STEP) Survey reveal eye-opening insights showing that patients, doctors and caregivers aren’t having the right conversations in the doctor’s office, which may lead to miscommunication and incorrect perceptions.1 When it comes to epilepsy diagnosis, treatment and management, we have the opportunity to enhance the conversation around the disease. Ultimately, something needs to be done about it. The STEP Survey was designed to increase understanding of the disease, focusing on bringing about more meaningful dialogue and open conversation that will ultimately lead to better experiences and outcomes for people living with epilepsy.
Epilepsy is one of the most common neurological diseases in the world. Nearly 65 million people suffer from epilepsy worldwide, including 3 million adults in the U.S.2 Even today, people living with epilepsy can suffer from stigma and discrimination, and a negative impact on overall quality of life for themselves and their families.
The STEP Survey, conducted by Kantar Health on behalf of SK Life Science, Inc., revealed disconnects between epilepsy patients, caregivers and healthcare providers that need to be addressed in order for open, honest discussions to take place.
To learn more about the STEP Survey, please click here.
To make the most out of the next doctor's visit, download a helpful guide for your discussion with your doctor. Within, you will find useful information such as suggested questions and topics that can be discussed with a healthcare professional to help assist in better engagement.
Click here to download a Spanish version of the STEPS discussion guide.
Learn the Facts: Examining the Disconnect Within the Epilepsy Community: Patients Living with Epilepsy, Caregivers and Healthcare Professionals Fact Sheet.
While many patients report that others want to help them (52%) or learn more about epilepsy (48%), many have felt alienated or rejected by others (45%), felt others are afraid to be with them (45%) and have been bullied (22%).
SK Life Science, Inc. engaged Kantar Health to develop and field a 40-minute online survey of 400 adult patients with epilepsy and 201 caregivers of adult epilepsy patients, and a 45-minute online survey of 258 healthcare providers (including 96 epileptologists, 112 general neurologists and 50 nurse practitioners/physician assistants). The U.S. study was fielded from February 7 to March 27, 2019 and was classified as an exempt study by the Sterling Institutional Review Board.
For more information about SK Life Science, Inc., please visit www.sklifescienceinc.com.
1. SK Life Science, Inc. and Kantar Health. “Seize the Truth about Epilepsy Perceptions (STEP) Survey.” February 7, 2019 to March 27, 2019.
2. Epilepsy Foundation. About Epilepsy: The Basics. https://epilepsy.com/learn/about-epilepsy-basics.
Accessed August 22, 2019.